Conditions and Diseases
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Mycosis Fungoides UK
An online support group for patients, relatives/friends of patients who have MF/CTCL.
http://groups.msn.com/MycosisFungoidesUK
B.C. Balance & Dizziness Disorders Society
Information and support for persons with balance, dizziness, and all vestibular disorders. To develop awareness of the issues surrounding these disorders.
http://www.balanceanddizziness.org
Genetic Conditions Rare Conditions Information Site
Lay advocacy and support groups, information on genetic conditions birth defects for professionals, educators, and individuals.
http://www.kumc.edu/gec/support/
National Institute Of Diabetes Digestive Disorders
The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields as well as many basic science disciplines.
http://www.niddk.nih.gov/
Infectious Diseases on Medbroadcast
Support and information on HIV, Herpes and Hepatitis. Provides clear and concise information on transmission, symptoms, testing, vaccines, medications, and dietary issues related to these diseases.
http://www.medbroadcast.com/health_topics/infectious_diseases/
Learning Disability History
Historical overview on the learning disability institution as well as being a resource for memorabilia and factual information on the three hospitals in Herfordshire: Cell Barnes, Harperbury and Leavesdon.
http://www.learningdisabilityhistory.com
Association for Macular Diseases, Delaware Valley Chapter
Macular Degeneration Support Group.
http://www.dvamd.org
Autoimmune Disease Support Boards
Autoimmune disease Support Info, message boards, and chatroom.
http://www.AIsupportboard.com
Rsd Angels & Chronic Pain Angels
This support group is for members, their family and friends who suffer from Rsd,Fibro and other Chronic Pain Conditions.
http://groups.aol.com/survingrsd?mmch_=0
Internet World by Stefanie Okelmann
Hip Dysplasia and the operation triple osteotomy, here you find the whole story about my hip dysplasia and the pain, the operation to fix it, including my X-rays with all information about recreation.
http://www.okelmann.com
Parkinsons disease Caregiver Information
Virtuual support group. Essential information for anyone who is caring for someone with Parkinson's disease. Discussion forum and support group information.
http://www.myparkinsons.org
Montgomery County Stroke Association (of Maryland)
This website provides stroke survivors and caregivers with info about strokes.
http://www.mcstroke.org
The TBI Den.
A haven for traumatic and general Brain Injury Survivors, their families and friends.
http://members.lycos.co.uk/thetbiden/index.html
NJ Foundation for the Blind
Our organization provides the blind and visually disabled community with rehabilitation training, social events, and vacations. We are located in Denville, NJ at Diamond Spring Lodge.
http://www.njffb.org/
jobe usa for unknown skin conditions everywhere
Lots of video,webcasts, video news, message boards,chat rooms, downloads.
http://jobeusa.org/
Finger Nail Biting
A support group for chronic finger nail biters.
http://www.fingernailbiting.com
AVM Arteriovenous Malformation
AVM Hemangeoma and Capillary Malformation support group hosted by the mother of a son with multiple AVM's.
http://aplasticcentral.com/avm
CIDP organisation of USA
A non profit support group for CIDP in USA.
http://www.cidpusa.org
Brain Tumour Foundation (UK)
The Brain Tumour Foundation (UK) provides support and information for those suffering from brain tumour.
http://www.ukselfhelp.info/btf
Christians with Chronic Invisible Illnesses
Links to several Christian groups for people with invisible illnesses such as CFS, FM and MCS.
http://members.shaw.ca/zonaszone/christian.html
Alexander Foundation
Alexander Foundation is a non-profit charitable institution that supports the funding and research of Cloverleaf Syndrome.
http://www.thealexanderfoundation.com/
Back pain articles and discussion forum
Learn the keys to eliminating back pain. LosetheBackPain.com offers free articles and a discussion forum on all aspects of back pain.
http://www.losethebackpain.com
West Virginia Lymphedema Network
The West Virginia Lymphedema Network is a volunteer support group in West Virginia. The mission is educate and increase awareness of lymphedema treatment, discuss medical research, and insurance issues.
http://www.wvlymph.org
Tri 2 Cure Sarcoma
A website containing information on Sarcoma. Further the efforts of David Rich raising money for Sarcoma Reearch by competing in the Ironman.
http://www.tri2curesarcoma.com
Polio Echo, Inc
Support group for people with Post-Polio Syndrome in the Phoenix, AZ area. There is information on the local chapters and their activities and speakers as well as updated articles and events to come.
http://polioecho.org
North American Chronic Pain Society
Chronic pain can cause many problems. We are a Support Group who helps all in pain.
http://www.nacps.us
Neurosarcoidosis Support Group
A support group for anyone with neurosarcoidosis, CNS sarcoid, systemic sarcoidosis, or anyone wanting more information on this rare disease. Includes live chats.
http://health.groups.yahoo.com/group/neurosarcoidosis/
BEES (Bladder Exstrophy/Epispadias Support) UK
Offers support by telephone and letter, raising awareness about the condition and giving advice and information on incontinence. Biannual Newsletter.
http://www.ukselfhelp.info/bees
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